Advocacy

Advocacy lies at the core of our mission. Through educational resources and volunteer support, the FPA empowers the facial pain community to advocate for themselves and one another.

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Empowering the Facial Pain Community

Individual Advocacy

Support Starts Here

  • One-on-One and Group Support
  • Educational Webinars & Articles

Awareness Advocacy

Shining a Light on Facial Pain

  •  Facial Pain Awareness Month
  •  Rare Disease Day

Systems Advocacy

Collective Action for Change

  • Partnering for Policy Change
  • Advocating for Research Funding

Getting Informed & Getting Involved

Advocacy 101

Advocacy 101: What is Advocacy and Why Does it Matter?

State Advocacy

The RDLA State Advocacy Hub is a comprehensive resource for rare disease advocacy at the state level.

Federal Advocacy

Partnering to advocate for fair policies at the federal level for people living with headache disorders in the US.

Meeting You Where You Are Today

State Resource Center

Learn about free and low-cost programs and services available in your state to aid in your rare journey.

Disability & Advocacy

Facial pain patient Anna Williams shares tips and advice for those interested in patient advocacy.

Medicare Reforms

Learn more about the final two reforms to the Medicare Part D program that take effect January 1, 2025.

Research News