Advocacy lies at the core of our mission. Through educational resources and volunteer support, the FPA empowers the facial pain community to advocate for themselves and one another.
From using our voices during Facial Pain Awareness Month and Rare Disease Day to sharing our lived experience with researchers seeking to understand facial pain and find better treatments.
As the FPA continues to meet you where you are today, we press forward for progress. By partnering with organizations committed to advocating for legislative changes, funding allocations, and policy reforms, we can amplify our collective voice and have a greater impact.
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Collective Action for Change
Advocacy 101: What is Advocacy and Why Does it Matter?
The RDLA State Advocacy Hub is a comprehensive resource for rare disease advocacy at the state level.
Partnering to advocate for fair policies at the federal level for people living with headache disorders in the US.
Latest News & Ways to Take Action
Learn about free and low-cost programs and services available in your state to aid in your rare journey.
Facial pain patient Anna Williams shares tips and advice for those interested in patient advocacy.
Learn more about the final two reforms to the Medicare Part D program that take effect January 1, 2025.
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