Dedicated to advancing the understanding and treatment of neuropathic facial pain, the Facial Pain Association (FPA) provides non-financial support of research efforts, including letters of support, community survey data, patient and caregiver advisory groups, focus groups, and survey/questionnaire distribution. The FPA will also launch a patient registry through NORD’s IAMRARE® program next year to gather invaluable data to help move research forward.

Since launching our Research Initiative in 2021, we have made tremendous progress.

• FPA Volunteers have shared their stories with scientists and researchers and served on patient advisory boards.

• Members of the community have participated in clinical trials, completed surveys, and provided research reviews.

• We have signed letters of support for physicians and researchers requesting grants from the National Institutes of Health (NIH), the NIH’s National Institute of Dental and Craniofacial Research (NIDCR), and the NIH’s National Institute of Neurological Disorders and Stroke (NINDS) to better understand facial pain and develop new treatment options.

• We have partnered with organizations to advocate for policy changes and signed letters of support for increased research funding to benefit the facial pain community.

Disclaimer: The Facial Pain Association (FPA) is enthusiastic about medical research and encourages those with neuropathic facial pain, including trigeminal neuralgia, and related healthcare conditions to consider participation. It is important to note, however, that the FPA is not offering, nor is it qualified to offer, a scientific or medical endorsement of any Institutional Review Board (IRB) approved patient study. An IRB is a committee established to review and approve research involving human subjects. The purpose of the IRB is to ensure that all human subject research is conducted in accordance with all federal, institutional, and ethical guidelines. All studies and trials listed have IRB or Ethics Committee approval where relevant. The study’s safety and scientific validity is the sole responsibility of the study sponsors and investigators. Patients should use the contact information provided to contact the research organization for more information.

Choosing to participate in a study is an important personal decision. Before you participate in a study, discuss all options with your healthcare provider. Although study sponsors may donate to the FPA, or support the FPA through advertising or corporate sponsorship, such support does not influence or guide our decision about the studies we identify.