Peer Mentors offer one-on-one support to others, like themselves, who are affected by facial pain. They are trained volunteers who can be empathetic listeners, share their experiences, connect you to resources, and share tips for coping with facial pain.
The goal is to provide support customized to your needs so you can connect with someone who knows what you’re going through. It’s up to you to make the first contact. However, once you reach out, volunteers will respond in a timely manner.
Three ways to connect with one-on-one support:
Common Ground: Bilateral trigeminal neuralgia type I & II, Migraine, Can talk about medical massage and craniosacral therapy.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Migraine, Trigeminal neuralgia (Atypical/TN2), Trigeminal neuralgia (Typical/TN1), Trigeminal neuralgia bilateral
Non-Surgical Treatment: Medical massage and craniosacral therapy
Common Ground: Neuropathic tooth pain, Transcranial magnetic stimulation (TMS) therapy, Mouth gurard, Can talk about compound medications including Klonipin and Gabapentin. 20 yr. breast cancer survivor.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Neuropathic tooth pain
Non-Surgical Treatment: Transcranial magnetic stimulation (TMS) therapy
Medication: Compound medications, Gabapentin, Klonipin
Common Ground: Geniculate neuralgia, Trigeminal neuralgia, Microvascular decompression, Various medications. Can talk about the emotional consequences of living with facial pain.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Geniculate neuralgia, Trigeminal neuralgia (Typical/TN1)
Common Ground: Trigeminal neuralgia type 1 right side mandibular, Microvascular decompression, Medicatoins including Oxcarbazepine, Carbamazepine, Gabapentin. Can talk about coping skills, advocating for yourself, work strategies. Father of two adult daughters, active in church.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Medication: Carbamazepine, Gabapentin, Oxcarbazepine
Common Ground: Trigeminal neuropathic pain, Postural orthostatic tachycardia syndrome (POTS), Peripheral nerve stimulator, Ketamine infusions
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Postural orthostatic tachycardia syndrome (POTS), Trigeminal neuropathic pain
Surgical Treatment: Peripheral nerve stimulator
Medication: Ketamine infusions
Common Ground: Español/Spanish Los voluntarios de la FPA son personas como usted que viven con dolor facial
Email: [email protected]
Relationship to Facial Pain: Español/Spanish
Common Ground: Occipital neuralgia, Gabapentin, Steroid Injection, Studied international affairs in Brussles, Belgium. Can talk to young patients.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Occipital neuralgia
Medication: Gabapentin, Steroid Injection
Common Ground: Trigeminial neuralgia, Occiptial neuralgia, Eagles Syndrome, Chiari Malformation, Microvascular decompression, 2 surgeries, Peripheral nerve stimulator implant, Balloon compression rhizotomy, Styloidectomy, Can talk about personal surgery & recovery.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Chiari Malformation, Eagles Syndrome, Occipital neuralgia, Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries, Peripheral nerve stimulator, Rhizotomy, Styloidectomy
Common Ground: Trigeminial neuralgia, Benign essential Blepharospasm, Botox, Can talk about declining Cyber Knife and not being a good candidate for microvascular decompression.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Benign essential Blepharospasm, Trigeminal neuralgia (Typical/TN1)
Non-Surgical Treatment: Botox
Common Ground: Trigeminal neuralgia (type 1), Microvascular decompression, Various medications, Can talk about dealing with complications from surgery. Retired mental health councelor.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Common Ground: Trigeminal neuralgia (TN1 with two branches of the cerebral artery), Microvascular decompression, Daily vitamin B-12, Various medications including Tegretol, Baclofen, Neurontin. Former leader of FPA Support Group.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Vitamin B-12
Medication: Baclofen, Neurontin, Tegretol
Common Ground: Trigeminial neuralgia, Microvascular decompression, Living pain free since surgery in 2007. Retired health care executive.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Common Ground: Trigeminial neuralgia, Genticulate neuralgia, Microvascular decompression 2 surgeries, Dealing with ongoing symptoms, Degrees in medicine and psychology, Firefighter, FPA Board Director, Philadelphia Support Group Leader.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Geniculate neuralgia, Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Common Ground: Trigeminal neurlagia type 1, Upper cervical chiropractc, Various medications including Tegretol, Gabapentin. Can talk about the benefit of support groups and relying on his Christian faith.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Non-Surgical Treatment: Chiropractic
Medication: Gabapentin, Tegretol
Common Ground: Idiopathic trigemnial neuralgia type 1 & 2, Gamma Knife, Acupuncture, Red light Therapy, Upper clavicle stimulation, Various medications including Oxcarbazepine, Gabapentin Can talk about being misdiagnosed for five years. Founder of TN Warrior ATV racing.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Idiopathic trigemnial neuralgia
Surgical Treatment: Gamma Knife
Non-Surgical Treatment: Acupuncture, Red light Therapy, Upper clavicle stimulation
Medication: Gabapentin, Oxcarbazepine
Common Ground: Trigeminal neuralgia, Microvascular decompression, Can talk about living pain free after successful MVD surgery, finding a diagnosis, working with dental professionals to raise awareness.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Common Ground: Trigeminal neuralgia, Microvascular decompression, Various medications, Can talk about ways to deal with the pain and working. Support Group Leader, Civil Engineer
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Common Ground: Trigeminal neuralgia, Microvascular decompression, Medications including Carbamazepine, Gabapentin, Professional comic. I want to help others because someone helped me.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Medication: Carbamazepine, Gabapentin
Common Ground: Peripheral traumatic trigeminal neuropathy, Physical therapy / desensitization training, Osteopathy, Trauma therapy. Can talk about self care, mental health, meditation. Chinese medicine and physiotherapist based in Switzerland Married and mother of three boys.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Peripheral traumatic trigeminal neuropathy
Non-Surgical Treatment: Physical therapy / desensitization training
Common Ground: Multiple sclerosis, Trigeminal neuralgia, Mulitple rhizotomies, Gamma knife, Various medication including Tegretol, Gabapentin, Carbamazepine. Can talk about suffering from facial pain for 25 years.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Multiple sclerosis, Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Gamma Knife, Rhizotomy
Medication: Carbamazepine, Gabapentin, Tegretol
Common Ground: Trigeminial neuralgia, Gamma Knife, 2 procedures, Microvascular decompression, 2 surgeries, Botox, Ongoing medication management, Various medications. Can talk about receiving a facial pain diagnosis, advocating for yourself, how to explain facial pain to your children.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Gamma Knife, Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Botox
Common Ground: Atypical facial pain, bilateral, Migraine, Microvascular decompression, 2 surgeries, Chiropractic, Acupuncture, CBD oil, Yoga. Can talk about searching for a diagnosis, Microvascular decompression, Managing work and family responsibilities while living with chronic pain. Professional church organist, and music teacher.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Migraine, Trigeminal neuralgia (Atypical/TN2) bilateral
Surgical Treatment: Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Acupuncture, Cannabidiol (CBD oil), Chiropractic, Yoga
Common Ground: Español/Spanish Los voluntarios de la FPA son personas como usted que viven con dolor facial
Email: [email protected]
Relationship to Facial Pain: Español/Spanish
Common Ground: Trigeminal neuralgia, Occipital neuralgia, Microvascular decompression, Can talk about repeat microvascular decompression surgery and recovery, Managing facial pain with a young child, Pregnancy and Trigeminal Neuralgia, Failed Microvascular decompression.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Occipital neuralgia, Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Common Ground: Trigeminal neuralgia (maxillary and mandibular branches), Microvascular decompression, Rhizotomy, Rhizotomy with heat ablation. Can talk about the impact on a young family, being misdiagnosed family history of trigeminal neuralgia.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries, Rhizotomy
Common Ground: Menigioma brain tumor pressing on trigeminal nerve, CyberKnife, Surgical removal of meningioma combined with microvascular decompression. Can talk about 3 E's of support: Experiences, Education, Encouragement. St. Louis Support Group Leader, Tumor Support Group Leader.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Menigioma brain tumor pressing on trigeminal nerve
Surgical Treatment: CyberKnife, Microvascular decompression, 2 surgeries
Common Ground: Español/Spanish Los voluntarios de la FPA son personas como usted que viven con dolor facial
Email: [email protected]
Relationship to Facial Pain: Español/Spanish
Common Ground: Trigeminial neuralgia V2 & V3, Microvascular decompression, Various medications, exercise, diet, biofeedback. Can talk about many treatments to aim relief. Eastern & Western medicine.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Biofeedback, Diet, Exercise
Common Ground: Atypical facial pain, Various surgical treatments & medications. Can talk about working and raising a family while coping with facial pain for 30+ years.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Atypical/TN2)
Common Ground: Trigeminal neuralgia (V1 branch), Aytpical trigeminal neuralgia, Idiopathic facial pain, Microvascular decompression, 2 surgeries, Balloon Compression Rhizotomy, Various facial injections, Ketamine infusion, Electroconvulsive therapy, Pain Treatment Program at Johns Hopkins. Can talk about acceptance of living with a chronic condition, Mental health and chronic pain.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Idiopathic facial pain, Trigeminal neuralgia (Atypical/TN2), Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries, Rhizotomy
Medication: Ketamine infusions
Common Ground: Trigeminal neuralgia bilateral, Glossopharyngeal neuralgia, Genticulate neuralgia, Recurring pain after surgery, Microvascular decompression, 4 surgeries, Dorsal Root Entry Zone (DREZ), Various complementary and alternative treatments, Founding member of Young Patients Committee (YPC), FPA Board of Directors, Can talk to young patients and their parents.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Glossopharyngeal neuralgia, Trigeminal neuralgia (Typical/TN1) bilateral
Surgical Treatment: Dorsal Root Entry Zone (DREZ), Microvascular decompression, 2 surgeries
Common Ground: Trigeminal neuropathic pain, bilateral pain in all three branches, Cold Laser Therapy, Various complimentary treatments, Can talk about Anxiety/depression, medications, support groups, navigating the healthcare system.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Common Ground: Neuropathic facial pain associatied with 3rd branch of the trigeminal nerve, Microvascular decompression, Radiofrequency Rhizotomy 3 surgeries. Can talk about a variety of complimentary treatments including upper cervical chiropractic.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Neuropathic facial pain
Surgical Treatment: Microvascular decompression, 2 surgeries, Rhizotomy
Non-Surgical Treatment: Upper cervical chiropractc, Upper clavicle stimulation
Common Ground: Hemifacial spasms, Microvascular decompression, Botox injections, Can talk about succesful surgery, lived with hemifacial spasms for 13 years and searched for others as a support and found no one.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Common Ground: Trigeminal neuralgia, Temporomandibular joint disorder (TMJ), Microvascular decompression, Gamma knife, 2 surgeries, Rhyzotomy. Can talk about finding treatment in a rural area, wisdom tooth extraction, misdiagnosis of facial pain.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Temporomandibular joint disorder (TMJ), Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Gamma Knife, Microvascular decompression, 2 surgeries, Rhizotomy
Common Ground: Trigeminal neuralgia, Atypical trigeminal neuralgia, Gamma knife, Microvascular decompression 2 surgeries, Glycerol Rhizotomy, Can talk about managing career and family stress, balancing nutrition and fitness training for overall health. Retired from 31 yr corporate career in internal audit and accounting.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Atypical/TN2), Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries, Rhizotomy
Common Ground: Tigeminal neuropathic pain as a result of dental injury, Anesthesia dolorosa, Cyber Knife, Radiofrequency ablation. Can talk about facial pain after dental injury, medications, neurosurgeons.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Anesthesia dolorosa, Trigeminal neuropathic pain
Surgical Treatment: CyberKnife, Radiofrequency ablation
Common Ground: Atypical trigeminal neuralgia, Trigeminal neuralgia, Migraine, Microvascular decompression, Gamma Knife, Can talk about botox, medical cannabis, physical therapy.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Migraine, Trigeminal neuralgia (Atypical/TN2), Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Gamma Knife, Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Botox, Physical therapy / desensitization training
Common Ground: Friend of someone living with facial pain due carcanoma of the tongue, B.D.S. MS in Orofacial Pain Oral Medicine, not a physician but plans to teach, Speaks multiple Indian languages including Hindi, Malayalam, Kannada, Sanskrit, Telugu.
Email: [email protected]
Relationship to Facial Pain: Friend/Family/Caregiver
Common Ground: Trigeminal neuralgia, Glycerol Rhyzotomy, Multiple nerve blocks , Aptiom, Gabapentin, Qulipta Can talk about being in recovery and active in AA while living with facial pain.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Rhizotomy
Medication: Aptiom, Gabapentin, Qulipta
Common Ground: Trigeminal neuralgia (type 1 &2), Anesthesia dolorosa , Migraine, Microvascular decompression 2 surgeries, Craniotomy, Cyst removal, CBD and medical cannabis, Various medications. Can talk about long, delayed healing from surgery, living on a relatively low dose of medication and having success with it.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Anesthesia dolorosa, Migraine, Trigeminal neuralgia (Atypical/TN2), Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Craniotomy, Cyst removal, Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Cannabidiol (CBD oil)
Common Ground: Trigeminal neuralgia, Microvascular decompression, Can talk about experience with trigeminal neuralgia and surgery, support received from Peer Mentor and Groups. Widowed, retired Episcopal minister.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Tigeminal neuropathic pain as a result of dental injury, Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Common Ground: Trigemninal neuralgia, Neuroplastic therapy, Holistic techniques, Movement, Sensory integration, Can talk about medication side effects, surgery recovery.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Common Ground: Trigeminal neuralgia bilateral, Microvascular decompression, Radiofrequency ablaition. Can talk about searching for a diagnosis, benefits of medication for daily function, limitations of surgery outcomes.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1) bilateral
Surgical Treatment: Microvascular decompression, 2 surgeries, Radiofrequency ablation
Common Ground: Trigeminal neuralgia, Anesthesia dolorosa, Microvascular decompression, Peripheral nerve stimulation, Kenalog injections. Can talk about the challenges of living with anesthesia dolorosa.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Anesthesia dolorosa, Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries, Peripheral nerve stimulator
Medication: Gabapentin, Kenalog injections, Ketamine infusions
Common Ground: Trigemninal neuralgia, Microvascular decompression, Saline & Botox, Gabapentin, Nortyptaline, Tramadol. Can talk about significant pain reduction after MVD, although still has symptoms managed with medication.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Botox
Medication: Gabapentin, Nortriptyline, Tramadol
Common Ground: Trigeminal neuropathic pain bilateral, Temporomandibular joint disorder (TMJ), First bite syndrome, Anesthesia dolorosa, Cluster migraine, Microvascular decompression, Motor cortex stimulator. Can talk about managing multiple diagnoses.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Anesthesia dolorosa, Migraine, Temporomandibular joint disorder (TMJ), Trigeminal neuralgia (Typical/TN1) bilateral
Surgical Treatment: Motor cortex stimulator
Common Ground: Trigeminal Neuralgia, Bells Palsy, Radiofrequency ablation 2 surgeries, Facial chiropractic. Can talk about complementary treatments, reiki, hypnosis,talk therapy, living pain free after surgeries.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Radiofrequency ablation
Non-Surgical Treatment: Physical therapy / desensitization training
Common Ground: Chronic facial neuropathy. Can talk about intentionally focusing on finding JOY in the everyday Middle Moments, mental health provider and want to use my professional and personal experience to help others.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Chronic facial neuropathy
Common Ground: Trigeminal neuralgia, Acupuncture, Neurontin, Tegretol, Trileptal. Can talk about depression associated with chronic pain facial pain. Retired teacher and school counselor.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Non-Surgical Treatment: Acupuncture
Medication: Neurontin, Tegretol, Trileptal
Common Ground: Español/Spanish Los voluntarios de la FPA son personas como usted que viven con dolor facial
Email: [email protected]
Relationship to Facial Pain: Español/Spanish
Common Ground: Caregiver for partner with facial pain. Support Group Leader for Friends & Family. Can talk about caregiver concerns.
Email: [email protected]
Relationship to Facial Pain: Friend/Family/Caregiver
Common Ground: Trigeminial neuralgia, Microvascular decompression, Botox injections, Can talk about positive surgical outcome. Respiratory Therapist, Fire figher and EMT.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Anesthesia dolorosa, Migraine, Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Non-Surgical Treatment: Botox
Common Ground: Trigeminal neuralgia, Microvascular decompression, Tegretol, Triliptal, Gabapentin, Nortriptyline. Can talk about preparing for surgery and tips on recuperation.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Microvascular decompression, 2 surgeries
Medication: Gabapentin, Nortriptyline, Tegretol, Trileptal
Common Ground: Typical facial pain, Atypical facial pain, Gamma Knife 2 surgeries, Radiofrequency rhizotomy. Can talk abour typical and atypical facial pain, gamma knife radiosurgery, radiofrequency rhizotomy, upper cervical chiropractic. Professsional couselor and life coach.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Gamma Knife, Rhizotomy
Common Ground: Trigeminal neuralgia, MAGO (Maxio Anterior Guided Orthotic), Microvascular decompression. Can talk about young patients, post-surgery pain, medication side effects, shocking pain in nerves C5,7,9. Young Patients Committee Co-Chair.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: MAGO (Maxio Anterior Guided Orthotic), Microvascular decompression, 2 surgeries
Common Ground: Trigeminal neuralgia, Microvascular decompression multiple surgeries, Percutaneous rhizotomy, Gamma Knife. Retired symphony conductor.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Surgical Treatment: Gamma Knife, Microvascular decompression, 2 surgeries, Rhizotomy
Common Ground: Trigemninal neuralgia, Right jaw pain, Microvascular decompression, Gabapentin, Topiramate, Can talk about her healing team. Leads a weight class for seniors.
Email: [email protected]
Relationship to Facial Pain: Lives with facial pain
Diagnosis: Trigeminal neuralgia (Typical/TN1)
Medication: Gabapentin, Topiramate
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